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Vascular ehlers danlos syndrome
Discover Pinterest’s best ideas and inspiration for Vascular ehlers danlos syndrome. Get inspired and try out new things.
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When I was first diagnosed, like most people I knew nothing about vascular Ehlers-Danlos. Similarly, many of the doctors who first diagnose vEDS aren't experts either. I learned quickly that establishing the right network around me - both for personal support as well as medical support is absolutely critical. Dr. Peter Byers from the University of Washington recently presented guidance on how to develop a great Care Team... Read More
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#EhlersDanlosSyndrome Awareness #EDS ~There are at least 6 varieties of Ehlers Danlos and not everyone has every symptom.
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From: https://www.nhs.uk/conditions/ehlers-danlos-syndromes/
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Know the Symptoms...the eye cannot see what the mind does not know. #vEDS #ehlersdanlos
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Vascular Ehlers-Danlos Syndrome (vEDS)
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Managing #vEDS Vascular Ehlers-Danlos Syndrome
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